Live Raw Notes on Bruce Sterling’s capnote – #sxsw2016 .@bruces

March 15, 2016

Later, post-talk: Awesome Bruce Sterling talk.

The old days of SXSW.

Talked about Italy.

SXSW is looking kind of mature. What would SXSW be if she was a human being. Thirty years old, from Texas, a little over-educated. Dr. Amanda Southby.

What would I tell her when I met her. “Well I knew you when you were born” would not be appropriate. She has a child now.

What do you like? VR Goggles.

Can I get the drink with the paper umbrella? I need a little value-add design.

The explainer class can’t explain anything that’s actually going on.

I’m actually happy that things are far from explainability.

Data-driven society – what about the data on the thermometer?

Clay Shirky Explanation.

Social media breaks the Overton window (the ability of elites to set the agenda). (https://en.wikipedia.org/wiki/Overton_window)

Voting for Trump is actually a proper choice because the competition is actually far worse.

The Overton Window works best with Broadcast TV because the TV is just one class window in the house. Mobiles are worst than both. Crowdfunding is worse. Twitter really breaks the window. You get good mobilization? You don’t even need a political party.

150 Million voters is a huge audience, but it is less than the audience on Facebook.

The parties no longer control the essential resources they used to control. They’ve lost control of the way, means, opportunities.

Trump and Sanders can blow up party because they get how media works.

The trolls can insult their way, like the YouTube comments section.

Bruce is Skeptical

For example, Britain is trying to succeed from itself and they are usually the adults in the room.

What’s going on?

Shoshanna Zuboff, Harvard Biz School,

Master or Slave?: The Fight for the Soul of Our Information Civilization

. https://www.amazon.ca/Master-Slave-Fight-Information-Civilization/dp/1610395697 The new Surveillance Capitalism. Google, Apple, Facebook, Amazon are the four horsemen. (She ignores Microsoft, and they should be upset.)

Invasive power of the internet around us, their former users will become clients, that they will lead around like peons.

Germany: NSA land so an ideal place to land this mind-bomb.

They don’t spread prosperity, suck money out of the system and impoverish the people they are spying on.

Corollary: This justifies people’s anxieties about government versus Apple iPhone.

Surveillance marketing versus surveillance government.

About who has the ultimate surveillance keys.

Two enterprises tear each other down severely. If the feds weaken the stacks. If Apple manages to ignore the justice department it is actually destabilizing and cause them to do more and more weird stuff. They’re looking at financial crises.

Four wolves are at the door and they’re not paying attention.

Worried that people think math will solve all problems. In cyphering stuff and holding it for ransom is an aggressive use of cryptography. The idea that someone can put the whole of Silk Road in his pocket and get away with it is not going to work. It has been tried–look at BitCoin.

They begin to argue that BlockChain is bullet-proof. You have no organization around you.

The BitCoin community is sinister. They are like 4Chan with extra greed and organized crime. They make Goldman Sachs look like Goldie Locks.

BitCoiners will be turned in by their moms.

They’ll surround you with informants. You’re not going to get away from the human element. You’ll keep trying. BitCoin isn’t going to get better.

More people have mobiles than toilets and so forth, but not going to succeed.

Do Apple users have the power to be their best.

Does Microsoft send you where you want to go today?

Does everybody trust Google? Do they never do evil?

Does Facebook unite people with their most intimate dearest friends?

Dr. Amanda Southby can do with another fruity margarita. And consider what kind of world am I being my tot into?

It’s not like the tech companies prey on the blue collar. TEch companies prey on tech companies. IBM, AT&T, HP, and Cisco. Your uncle’s computational companies. They’ll get ripped to pieces because they’re closer to the cheese.

It’s like Finland losing Nokia. The blow to society was falling on the shoulders of engineers, coders, Dr. Amanda.

One of the big 5 will fade too. Who will be the first to go? I’m guessing it is the one people don’t mention as much. When their start-up chime is gone, we’ll miss them.

Maybe the issue is something deeper like neo-liberal capitalism. Neo-nationalism (and turning a hostile face to refugees).

Nowhere in the world is saying “send them to us, we’re trying to globalize.”

Venezuela, Somalia, Sudan, Afghanistan, Iran, ISIS, Britain (Scotland wants to succeed), EU failing, everyone hates Brussels, Germany will exit from its own self it has to. What’s that got to do with a bunch of American Tech companies? Maybe nothing?

The world is a failed state, technically speaking.

Erosion of legitimate authority to make collective decisions (like Congress.)

Huge operating systems. Facebook is not a church, not a state, people don’t know what to call it–an emanation of the Zuckerberg family.

No one can get nominated to Supreme Court. The Congress is frozen. All we have to do is blow out the executive and there’s no there, there.

We’re trying to move from one man/one vote to one dollar/one vote. Have the donor class run things more or less directly.

It’s the Putin Model. Let’s pretend to have elections, and me and my pals will tell you what to do. If you have oil money you can bribe the population. If you don’t, you’re just a dwindling autocracy.

The donor class ought to be running the world, but they can’t because they don’t have

A superpower whose worst enemy are ardent, internal patriots.

In Italy they say: “OK you got a Berlusconi. You got a bunch of rubes who fall for it like we do.”

I pretend to govern, and you pretend to pay taxes and it’s kind of okay.

Berlusconi is The Donald’s best case scenario.

[Describes Berlusconi’s deviant behavior.]

“Could be us…”

If we could get a functional government we’d be a unipolar super-power.

It isn’t MadMax, groceries have all kinds of delicacies in them.

The People are too busy with their screens to riot. If Amazon went down there’d probably be mile-high flames.

I think surveillance is overblown–it’s not as powerful as its fans believe it is.

They’re not paying attention to the population at all, they continue to be surprised by their behavior. The most surveilled people, Iraqis, don’t behave, we have no idea what they’re going to do.

Anyone with a drone over their head is actually doing what the guy with drones want. It’s just not working out.

Great Britain, the formerly “great” Britain, now infested with little video cameras. GCHQ sucked the life out of their military. They used to be able to go kick the ass of everyone. Now they’re like (…).

The decay of their democratic institutions is based on push-button hardware.

The only good idea is to rent out downtown London to billionaires.

2016 could have been the dynastic war between Bush and Clinton. But it’s not.

This is the Hillary that’s been batted around like a badmitten birdie.

Bushes are just classic Texas pols. I’m sure they’re very ashamed and feel bitterly disenfranchised. But they’ll await the next generation. They’ll be back.

No one expected it to happen. At least we’re not numbly repeating the same mistakes over and over.

People seem mildly interested. Political news is everywhere.

What’s the upside? The concluding moral? OK, well you know, “This too shall pass.”

This talk is very current-event focus, so will date quickly.

The president has met Dr. Amanda Southby means you are all grown up. You have captured the top of the pundit foodchain. You get the pope, that’s about–there’s no one else. Every day is a gift. Calamitous surprises can be good.

There is some daylight any kind of loss of credibility of the establishment.

The 30-year-old Amanda Southbys have his symptahy. She’s been through two major depressions. They are at a historic disadvantage.

The fact that conventional wisdom demolished actually gives some daylight to this generation. The Overton Window is opening, it has become possible to think outside of the rigid orthodoxies of right and left.

The more they chew on their own bare feet, there is some chance to return to the center.

Despair is an act of intellectual arrogance, because you falsely think you have everything figured out. Much of the joy will come from pleasant surprises. Rather than things rumbling along in their own inevitable dark fashion.

The only wisdom we’ll find will be uncommon wisdom.

Raw Notes #HealthAPI #SXSW with .@andreimpop .@jitin .@lisabari .@JoshCMandel

March 15, 2016

Raw notes, mostly unedited yet.

Description from SXSW website:

APIs have reshaped the web into an interconnected network of products and services that provide a seamless user experience and have enabled SaaS companies to take over the consumer and enterprise world. However, healthcare famously suffers from a matrix of siloed, dated technologies.

But where are the healthcare APIs? They’re coming. A generation of startups are taking on the enormous task of building simple, portable APIs for health data. These companies are building solutions that will finally bring about the interconnected health system that we are all desperately waiting for, and could hold the keys to cracking open the health IT market.

Why I attended: Because I am interested in the movement to make Wellness more usable.

What I learned (Post-Op): I had never heard of FIHR and learning about this opened my eyes to the fact that very smart people are working on making standards so that data can be easily exchanged. The first question asked during Q&A tapped into my inquiry this year at SXSW which is this: is it time to completely disrupt the idea of “doctor.”

The very simple phrase the questioner, who I think said he is the “CMO” (?) from the American Society of OBGYN is that doctors don’t actually think in data, they think in stories. Therefore there is a need to really create great data visualization of the patient story.

Conclusions I’m drawing: Big need for UX, content strategy (people who figure out how to tab and label groups of data) in this industry.

The raw notes:

Discussion of EHR (Electronic Health Records)

Making things usable.
“Meaningful use.”

The policy question – a very conservative industry, regulation comes in, then what happens with a product roadmap?

What does it mean for the guy with the computer to start winning? The people in *billing* started to use computers to “win” by streamlining billing (.@JoshCMandel).
So now it is how do we compensate people for giving “value,” e.g., high-quality care.

Vendors are expressing frustration that they need to check the boxes. And if it becomes compensation for box checking or you don’t get paid, the focus becomes box-checking.

The good sort of evil. When Governments light the beacon to get industry to go and do the right thing in the first place.

Commonwell – http://www.commonwellalliance.org/

A still evolving app. Started as a set of EHRs. Growing evil that was taking to a wrong place, good set of technologies helping them to inter-operate. Patient portals and app platforms joined. Where will providers really go for care to take better care of their patients.

“FHIR” is an acronym – Fast Healthcare Interoperability Resources – open-standard – being developed by Health Level 7. Like modern web standards. The goal is to describe the most common kind of Health Care data and how they are used and displayed. They define data models and using REST api, 3rd party apps can use to connect. Can pay to be a member. Creative Commons 0 license.

“Technically, FHIR is designed for the web; the resources are based on simple XML or JSON structures, with an http-based RESTful protocol where each resource has predictable URL. Where possible, open internet standards are used for data representation.”

PIMs – Health Industry Tradeshow. Was in Las Vegas. Lot of buzz around standards. How can we use these standards to plug in apps and services to run seamlessly.

Need open standards to allow for extensibility.

OLAF to authorize apps to connect.
FHIR to structure data
EPIC
CERNER
Medihealth

Hosting sandboxes and working together to try to resolve differences. If 12 different ways to converge API, how do we stay must be this way or optional.

Very valuable to be able to share data across network. On the horizontal side a lot of hope. Need for vendors to come together.

One EHR versus another EHR are not that different.

Human API: Look at underlying semantic model of the data. What’s under the structure (or semi-structure)? You can have the adaptor, but you must look at how these things fit together. Where the universe of things is known, here are all the known medications and dosages, for example. Have to do a lot more interpretation of the data when unstructured.

Mandel: “Interoperability” has lost its meeting so they created “substitutability” – meaning you can swap out old one and switch in new one. You need something much bigger than FHIR. Have to layer a few things on top of FHIR. 1) Security protocols and consistent across every system. 2) Terminology that are used to describe the data. To use successfully need to lock those things down. 3) If you want to lock into EHR, you need User Experience Glue, so you’re not just starting an isolated session.

Steve Hasley – CMO of American College of OBGYN. Has 30K docs that don’t think in data, they think in STORIES, in notes, physical history. Their challenge is getting data in.

Very exciting session.

Mandel: Need to tell the relevant part of the story in a clear way. Being able to build a viz tool on lab results, that’s something cool I can do with an app. When it comes to putting data back into the EHR that is easiest. An API like FIHR defines data in two directions. When we host a sandbox server, can do both things. In terms of real vendor implementations, start with read mostly, or read only.

Asnaani: First thing people wanted for Commonwell was Give me the Notes.

Designer for IBM had two questions about patient experience.
Challenges for privacy on healthcare end. Both privacy and security questions.

Pop answered: Have to be very transparent with end user. Need to let them know what is going from where to where. When you build that into your platform you are enabling consumers to vote with their data.

@Brenebrowne #sxsw2016

March 12, 2016

These are my raw notes.

If you were brave enough to love, you will be heartbroken.

We are emotional first, rational second.

The brain wants to protect you. And the brain loves story. We are hard wired to love beginning, middle, end.

Brain does not like ambiguity and uncertainty. 

We are conspiratorial all the time.
In The absence of data we will always make up a story.
Sfd – shitty first draft is first story will tell ourselves about something.
Dr. Pennebaker power of writing down in little spurts. Write ten to fifteen minutes about a trauma five days in a row.

When you deny your story, it owns you. When you own it, you can write the ending.

Failure is an Imperfect word. As soon as you see it, it isn’t a failure.

Vulnerability minus boundaries isn’t vulnerability.

#sxsw @medialab Nanotech and Future of Bioengineering Live Notesle

March 16, 2015

Dr. Bob Langer presented; was supposed to be George Church.

Moderator Joey Ito (MIT Media Lab)

Convergence of engineering and medicine: Using materials to deliver drugs. First: Angiogenesis inhibitors.

Example of how the concepts of people of what can and cannot be done actually stop invention. Dr. Langer hadn’t heard you “could not do” what he has done.

Started with explanation of metasis of cancer and need to stop that process to stop cancer. Used polymer to deliver drug into tumor.

Key thing in science is reproducing results.

1976 published paper on polymers.

FDA has added Angiogensis therapy to list of approved cancer treatments.

NOVA video clip (KQED9)

Slide with Nanochip with microwells for drugs to be contained. Cover the drug with bio-inert, but that open with remote control.

Can take a chip, and communicate over an approved FCC and FDA chip, communicate with via a “Medical Implant Communications Service Band.” This helps with ADHERENCE.

Clinical trial done in Denmark.

Talked about treatment of using this for Osteoporosis. Huge patient compliance issue. Must be given at the right rate.

In Denmark did a small test and had excellent results [My comment: only 8 patients.]

[Dallas Buyer’s Club comes to mind in some of the sessions I am in this morning.]

Talked about ability to implant in “third world” women to control and able to plan families. “Personal Fertility Control System.” [This worries me as seems ripe for abuse.]

One of the things you learn is design. Make it a “design problem.”

Principle of therapy. Line surgical cavity with BCNU-polymer. BCNU half life in vivo = 12 minutes. Polmer protects BCNU from degradation. Explose only the cells you want to BCNU.

Money: Write proposals for grants to Fed Gov’t. But proposals were failing.

Showed a timeline showing the proposal bouncing around from 1981 to 1996, overcoming every “approach that will not work.”

Talked about how his post-docs and students all became heads of things, and leaders — whereas the reviewers did not become leaders.:)

Stents: causing recinosis (smooth muscle cells start proliferating.) Solve is to coat with a polymer. Elizar Edelman, professor at Harvard, did lot of work on this technology.

Example of liver failure and doing implantation with biodegradable polymer scaffold.

Speculates in 40 years plastic surgeons will be able to install a new nose.

Can use polymers to replace skin for burn victims, new bones, etc.

FDA approved for burn victims and diabetic patients.

Replacement spinal cords have been tested on mice. Implant plus stem cells makes replace better.

Showed control versus treated animals in laboratory settings. [Difficult to watch because on one hand, useful results. On other, cruel to those particular animals.]

In human trials, main success has been no adverse events.

Can do work at the interface of engineering of biology and medicine, to relieve suffering and prolong life.

Q&A with Joey Ito:

Internet start-ups are better posed to solve problems because no one told them they can’t do it.

Need to know the science? Depends on what you do in the company. It’s a team effort, doing different aspects of the work, very well. Role for all kinds of people in terms of the start-up culture.

Joey thinks of things connected together into a system. Our whole body is a system. System outside and drug compliance via social media. How important things like community and systems are.

Dr. Langer: My goal is to take concepts that seem impossible, but he feels can change the world. And move it to where it seems feasible.

How to fix the FDA? Bob Langer: FDA is very well-intentioned but under-staffed. They are not in a position to do things they’d like to do scientifically. If they make a slight mistake it echoes loudly, [so makes them a bit risk-averse.] Also the political changes affect. Having good role models is important.

Can bioengineering be used in entertainment? Polymer libraries. Some are used in hair care.


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